Patient-Led Research

Your Research.
Your Control.
Your Future.

A specialized platform for rare disease patients to aggregate data, match with precision trials, and push research forward.

HIPAA Compliant Zero Data Training Free During Beta
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"There are 30 million rare disease patients. Most have to become amateur researchers just to survive."

AC
Alex Chen
Founder, ResearchBridge
The Origin Story

Why We Built ResearchBridge

Three years ago, my family was diagnosed with a rare disease. We spent months collecting information—10+ doctor visits with contradictory advice, piles of medical research papers we couldn't understand, and clinical trials websites that were scattered, outdated, and overwhelming.

We realized that the system relies on patients doing the heavy lifting. But patients are the ones who are sick, tired, and overwhelmed.

ResearchBridge exists to change that dynamic. We are the bridge between patients and clinical research. We translate the science, organize the data, and illuminate the path forward.

From Confusion to Control

We don't just "list features." We solve the specific, painful problems of navigating a rare disease diagnosis.

Your Health Gets Organized

ResearchBridge becomes your personal research vault. Securely store genetic reports, medication history, and test results in one place. No more scattered documents.

Precision Matching

Our algorithm analyzes 50,000+ active clinical trials and identifies matches based on YOUR genetic profile.

97%
Match Confidence

Jargon-Free Science

We break down complex genetic science into plain language. Understand exactly what the treatment does without the headache.

Doctor Discussion Guides

Walk into appointments prepared. We give you specific questions to ask based on your matches.

Built on Peer-Reviewed Research

ResearchBridge applies methodologies developed by leading rare disease researchers. We stay current with the latest genetic research and clinical best practices. Here are key researchers whose work informs our approach:

Dr. Alison Elliott, PhD

Genetic Counselor & Genomics Researcher
University of British Columbia

Genetic counseling with genome sequencing in pediatric rare disease. Led GenCOUNSEL, the largest genetic counselling research grant. Published foundational work on optimizing genetic counseling for rare disease diagnosis.

Her research informs how we structure plain-language trial summaries.

Dr. Steven Gray, PhD

Gene Therapy Researcher
UT Southwestern Medical Center

Pioneer in gene therapy for rare neurological diseases. Director of UT Southwestern's Gene Therapy Program. Developed AAV gene therapy approaches for Giant Axonal Neuropathy and Batten disease.

His work helps us evaluate clinical trials for safety and efficacy.

Dr. Berge Minassian, MD

Pediatric Neurologist & Geneticist
UT Southwestern Medical Center

Division Chief of Pediatric Neurology. Discovered genes responsible for Lafora disease. Co-leads UT Southwestern's Gene Therapy Program. Specializes in neurogenetic conditions and rare epilepsy disorders.

Ensures our platform reflects the complexity of rare disease management.
Research-informed methodology Peer-reviewed sources Clinical best practices Patient-centric approach

Clear, Actionable Intelligence

We strip away the jargon so you can focus on the opportunity.

97%
Match Confidence

Phase 3 JAK Inhibitor Study

Multiple Sites Recruiting Phase 3

This study tests a new medication that may reduce joint pain for patients who haven't responded to standard therapy.

Travel Required
Moderate
Duration
12 Weeks
Eligibility
High

How ResearchBridge Analyzes 50,000+ Clinical Trials

We analyze the world's largest research databases in real-time to find YOUR perfect match.

Google Scholar
Peer-reviewed genetic research
50,000+ articles
ClinicalTrials.gov
US clinical trial registry
50,000+ active trials
PubMed Central
Medical research database
12+ million articles
WHO Trial Registry
International trial data
100,000+ global trials
FDA Open Payments
US drug development data
40,000+ trials
Genetic Databases
Genetic mutation databases
5+ million variants

AI Analysis Engine

Vertex AI
Bedrock
Claude
Open Source
Trial Matches
95% - 100% confidence personalized
Plain-Language Summaries
Medically reviewed translations
Doctor Discussion Guides
Specific talking points
Risk Assessments
Safety & contraindications
Timeline & Next Steps
Enrollment process guide

How We Verify Research

Trusted sources. Human review. Your understanding.

Data Sources

  • PubMed Central & MEDLINE
    12M+ articles
  • ClinicalTrials.gov
    50K+ active trials
  • NIH & FDA Databases

Our Process

  • AI Analysis Identifies relevant patterns
  • Medical Review Board verification
  • Simplification Plain language translation

You Receive

  • Verified Trial Matches
  • Plain-Language Summaries
  • Doctor Discussion Guides

Complete Transparency On Our Roadmap

We're building in public. We are taking the time to do this right.

NOW (Live)

INFRASTRUCTURE
  • Secure patient profiles
  • AI clinical trial matching engine
  • Medical board review process

Building (Q1-Q2 2025)

PARTNERSHIPS
  • Rare disease foundation pilots
  • Hospital data integration tests

Foundation (Q3-Q4 2025)

SECURITY
  • SOC2 Compliance Audit
  • Third-party security review

Public Launch (Q2 2026)

EXPANSION

Open enrollment for all rare disease patients globally.

Sustainable & Transparent

We believe rare disease patients shouldn't have to pay for survival information.

Free Forever

  • Secure Patient Profiles
  • Clinical Trial Matching
  • Plain-Language Summaries
  • Doctor Discussion Guides

Our Promise

  • No selling data to pharma
  • No advertising targeting
  • Funded by Advocacy Partnerships
  • Funded by Hospital Integrations

Your Research Journey Starts Here

Join our founding cohort launching Q2 2026. Be among the first to use ResearchBridge.

Early access signups opening soon. No credit card required.